La nostra struttura di Public Affairs condivide un provvedimento importante.
Il Senato ha approvato in via definitiva la legge per la cura delle malattie rare e per il sostegno della ricerca e della produzione dei farmaci orfani. Il provvedimento, che a breve verrà pubblicato in GU, offre una prima risposta, da tempo attesa, a tanti pazienti e alle loro famiglie.
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